Jefferson University Hospitals

Liver Transplant Recipient Colonel Waun Becomes Patient Educator

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"I fully experienced life on both sides of the bed rails"

Colonel Darnell Waun has been a critical care nurse for all 28 years of his career in the Air Force Nursing Corps, but only after a 2005 liver transplant at Jefferson has he fully experienced life, as he says, on "both sides of the bed rails."

In 1998, while serving as Commander of the 8th Medical Operation Squadron and Chief Nurse at Kunsan Air Force Base, Korea, Col. Waun was diagnosed with primary sclerosing cholangitis (PSC). This disease, which causes the bile ducts to narrow through inflammation and scarring, progresses slowly, resulting in a seven- to ten-year life expectancy. After undergoing a partial liver resection, Col. Waun enjoyed many years of relative good health, even flying with the Air Force Air Vac Unit until 2003.

In June 2004, Col. Waun was stationed at Dover Air Force Base (AFB) in Delaware – an assignment that he highlights as a "twist of fate," as it ultimately brought him to Jefferson. He knew Jefferson Oncologist Edith Mitchell, MD (a former reservist), who referred him here for a hepatology assessment. Symptoms related to PSC recurred, and he was placed on the transplant wait list on Valentine's Day 2005.

"The waiting is the hardest part," he explains, "because there may be no end date. Your life revolves around staying close to the transplant center." He grew sicker, ultimately having to sleep leaning over the couch so his abdomen would not fill with fluid.

On October 29th, 2005, the Colonel learned he was the back-up recipient for a liver.

"It was a huge rush," he says, "but I also was aware that this could be my very last procedure."

On Halloween Day, a matching liver became available, and Cataldo Doria, MD, performed the surgery. Col. Waun was discharged within 16 days and back at work on January 3, 2006, as the Commander of the 436th Medical Group at Dover AFB. He has since communicated with the donor's family, who has experienced both sides of transplant surgery. The donor's brother had received a heart transplant. Col. Waun was even fortunate enough to meet his donor family, on the second anniversary of his transplant.

Col. Waun retired from the Air Force in October 2006 and considered becoming a transplant coordinator.

"I'd like to be able to make a similar kind of difference in the lives of others," he says, "although I firmly believe that there is also something bigger that plays a hand."

In May 2007, he was hired as a patient educator at University Transplant Center (UTC) in San Antonio, Texas, and finds it to be the most rewarding job. He does pre- and post-op patient education for liver, lung and kidney transplant recipients and their families.

He is also the editor of the UTC "Renew" newsletter for recipients and their families, which is published twice a year; involved with Vital Alliance, an organization he says is comprised of transplant recipients and their families that promotes donor advocacy and education; and a speaker at the "Best Practice" seminars so that medical professionals can gain a better understanding of a patient's experience with transplantation.