Jefferson University Hospitals

Advocacy and Support Groups

Goals, resources and support are provided for the following areas:

Financial Advocacy

Below is a list of some of the foundations we utilize to obtain patient assistance:

The Assistance Fund

CancerCare

Good Days

HealthWell Foundation

 Leukemia and Lymphoma Society (LLS)

Patient Advocate Foundation (PAF)

Patient Access Network Foundation (PANF)

Patient Services, Inc. (PSI)


Medicare Patients

In the state of PA patients may be eligible for the PACE program.

Hepatitis C

Goal: To eradicate the viral disease

Specialists at Jefferson Health's Hepatitis C Center offer patients tailored programs and access to expert consultations and clinical trials.

In addition to Jefferson's programs, patients may utilize the following information to better understand their condition:

Disease Education and Treatment Resources

HCV Guidelines
U.S. Department of Veterans Affairs - Viral Hepatitis

Community and Patient Advocacy Support Resources

Hepatitis Central
Hep Mag

Hematology

HIV

Goals

  • Suppress HIV multiplication to reach an undetectable viral load.
  • Improve quality of life, decrease pill burden ( number, size  pill, frequency of administration).
  • Restore immune function.
  • Find a treatment regimen that suppresses HIV but is also patient preferred

Educational Resources

Public Health Publications - Recommendations for HIV Prevention
AIDSinfo
World Health Organization
Guidelines for the Use of Antiretroviral Agents

Immunology

Goals

  • Reducing frequency and severity of exacerbations
  • Managing symptoms to improve or maintain physical and psychological functioning and optimal well-being
  • Preventing or postponing long-term disability to maintain independence
  • Improving or maintaining quality of life
  • Maintaining optimal therapy adherence
  • Minimizing and managing comorbidities and side effects

Educational Resources

Rheumatoid Arthritis

Arthritis Foundation
American College of Rheumatology

Psoriasis – Psoriatic Arthritis

National Psoriasis Foundation
American Academy of Dermatology

Crohn’s & Colitis

Chron's & Colitis Foundation

Multiple Sclerosis

Goals

  • Reducing frequency and severity of exacerbations
  • Managing symptoms to improve or maintain physical and psychological functioning and optimal well-being
  • Preventing or postponing long-term disability to maintain independence
  • Improving or maintaining quality of life
  • Maintaining optimal therapy adherence
  • Minimizing and managing comorbidities and side effects

Disease and Treatment Resources

MS Focus
National MS Society
MS Care
Medline Plus - MS
American Academy of Neurology - MS

Community Resources and Patient Advocacy Support

National MS Society
MS Focus
e-pill Medication Reminders
Daily Strength
Plegridy

Oncology

Goals

Goals will be defined as Curative, Progression Delay, Palliative, Symptomatic. The goals of chemotherapy depend on the type of cancer and how far it has spread. The main objective is to get rid of all the cancer and keep it from coming back.

If this is not possible, you might have chemotherapy to delay or slow down cancer growth. Delaying or slowing cancer growth with chemotherapy also helps manage symptoms caused by the cancer. Chemotherapy given with the goal of delaying cancer growth is sometimes called palliative chemotherapy.  

Learn more about Jefferson Health's Sidney Kimmel Cancer Center's patient and family support.

Educational Resources

Cancer.gov
National Comprehensive Cancer Network
Leukemia & Lymphoma Society
Cancer.net

Medication Resources

Medline Plus Drug Information
Cancer.net - Navigating Care

Community Resources and Patient Advocacy Support

Leukemia & Lymphoma Societ Support Resources

Solid Organ Transplant

Goals: Avoid rejection of organ(s) and promote quality of life improvement

Jefferson Health's Transplant Institute offers patients a range in services and resources including specific areas such as our:

Additional Educational Resources

Medline Plus - Pancreas Transplantation
American Journal of Transplantation - Kidney Disease
Guidelines for Heart Transplantation (NCBI)
American Association for the Study of Liver Diseases - Liver Transplantation