Jefferson University Hospitals

Frequently Asked Questions

What's the difference between seeking care at an ALS clinic versus a regular neurology office?

An ALS clinic has been designed to meet the unique needs of ALS patients. The ALS Association recommends that ALS specialty clinics include, at a minimum:

  1. An active ALS research portfolio
  2. A formal ALS clinic, held at least once a month (our formal clinic is held weekly)
  3. A close, collaborative relationship with the ALS Association Great Philadelphia Chapter in order to provide all of the resources people living with ALS require

Jefferson's Weinberg ALS Center meets all of these requirements and in some cases, exceeds them.

What is the weekly ALS clinic?

Our patients may visit us whenever in need, however a formal ALS clinic meets once per week. During each clinic, professionals from multiple disciplines are available in the same space. This means patients can quickly and easily visit with all of the providers they need to see. Professionals immediately available in our weekly ALS clinic include:

  • Neuromuscular neurologists
  • Registered nurses
  • A social worker
  • A mental health nurse
  • A speech and language pathologist
  • A dietitian
  • An occupational therapist
  • A physical therapist
  • A respiratory therapist
  • Palliative care providers
  • An assistive technologist
  • A representative from the ALS Association Greater Philadelphia Chapter

Professionals from pulmonology and physical medicine are available on-call and will be summoned if needed.