Jefferson University Hospitals

Palliative Care Resources for Patients and Families

Aging With Dignity
This site contains "Five Wishes," the living will document that helps individuals express their final wishes while also addressing all of a person's needs including medical, personal, emotional, and spiritual.

Caring Connections
An initiative of the National Hospice and Palliative Care Organization that provides a wide range of free materials about end-of-life care

Caring Conversations
A consumer education initiative that helps individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions.

Center for Healthcare Decisions
Established in 1994, this nonprofit organization educates the public on healthcare issues, policies and practices. The Center for Healthcare Decisions' key areas of focus are improving end-of-life care, prioritizing healthcare coverage and getting good value in health care.

Closure
This organization seeks to redefine quality care for people with life-threatening illness by educating consumers and healthcare professionals about end-of-life issues and options.

Get Palliative Care
This site is sponsored by the Center to Advance Palliative Care (CAPC) and is specifically designed with the patient in mind. Patients and families can go to this site to learn more about palliative care through answers to frequently asked questions and listings of palliative care resources.

Growth House
The Internet's "leading on-line community for end-of-life care, Growth House's mission is to improve quality of compassionate care for people who are dying through public education and global professional collaboration."

Kidney End-of-Life Coalition
Even though many dialysis patients have significant co-morbid conditions that affect their care, they have a high quality of life and can be expected to enjoy extra years of life afforded dialysis. For about 20% of patients who withdraw from dialysis prior to death or experience heart disease, infection, and more while continuing dialysis end-of-life care is an important part of a treatment plan.

Means To A Better End (PDF)
The Robert Wood Johnson Foundation sponsored Report on Dying in America Today details the Five Principles of Palliative Care.

National Hospice Foundation
The National Hospice Foundation envisions a world where everyone facing serious illness, death, and grief will experience the best that humankind can offer.

Palliative Doctors
This web site was developed for consumers by the American Academy of Hospice and Palliative Medicine. It highlights the specialty of hospice and palliative medicine and its benefits to patients and families with all types of serious illness; provides information on how to find a hospice and palliative medicine specialist; and includes links to various hospice and palliative care resources and related sites.

Physician Orders for Life-Sustaining Treatment (POLST) Paradigm
The Physician Orders for Life-Sustaining Treatment (POLST) Paradigm program is designed to improve the quality of care people receive at the end of life. It is offered on a state or community-wide basis and was developed initially in response to seriously ill patients receiving medical treatments that were not consistent with their wishes.

Put It In Writing
This AHA resource provides basic facts about advance directives and encourages patients to explore their preferences for care at the end of life.